A Quote by Suleika Jaouad
There's a photograph of me in the transplant unit where I have a vomit bucket under one arm, I have my laptop on my knees, and I'm crying, not because, you know, I'm about to have a bone marrow transplant, but because I've missed a deadline!
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Just a few years ago, at the age of 22, I learned I had an aggressive form of leukemia. I needed intensive chemotherapy and a bone marrow transplant to save my life. Back then, my doctors told me that I had a 35 percent chance of surviving my transplant.
My column launched while I was in the bone marrow transplant unit. And I remember waking up the next morning and opening my inbox and seeing hundreds of emails from strangers all around the world.
Soon enough I would learn the specific diagnosis: myelodysplastic syndrome, a disorder of the bone marrow. In my case, the disease growing inside me had morphed into acute myeloid leukemia. I would need intensive chemotherapy and a bone marrow transplant to save my life.
The thought of going through a bone marrow transplant, which in my case called for a life-threatening dose of chemotherapy followed by a total replacement of my body's bone marrow, was scary enough. But then I learned that finding a donor can be the scariest part of all.
Every year, nearly two-thirds of the approximately 200,000 patients in need of a bone marrow transplant will not find a marrow donor that matches within their families.
The bone marrow transplant procedure itself can be dangerous, but it is swift, which makes it feel strangely anti-climactic.
Dozens of chemotherapy treatments and one bone marrow transplant later, I wish I could say that I've mastered the art of not working. But there are still days when I wake up feeling simultaneously restless and bored.
Today, my brother and I share almost identical DNA, the result of a successful bone marrow transplant I had last April using his healthy stem cells. But Adam and I couldn't be more different.
I have always loved kids. They are little adults with so much personality, and it is fun to work with that. Whether that means donating school supplies or medication, or [using my celebrity] to get them a bone marrow transplant, I want to help.
I have always loved kids. They are little adults with so much personality, and it is fun to work with that. Whether that means donating school supplies or medication, or using my celebrity status to get them a bone marrow transplant, I want to help.
Traveling gave me the opportunity to reinvent myself. You can imagine my excitement when, one year after my bone marrow transplant and two years after my cancer diagnosis, my doctors gave me permission to take my first big trip since cancer. Freedom, finally!
It felt like 10 years, but I was actually in treatment for three-and-a-half years. I finally finished in April. Two years ago, I had a bone marrow transplant from my brother, which saved my life, so I feel really grateful.
I've been fortunate to be treated by excellent doctors at world-class hospitals. In the last year alone, my insurance has covered over a million dollars in medical expenses, including a bone marrow transplant and 10 hospitalizations amounting to a combined five months of inpatient care.
Her face crashes. She hasn't dealt with a single transfusion or lumbar puncture. She wasn't allowed near me for the bone-marrow transplant, but she could have been there for any number of diagnoses, and wasn't. Even her promises to visit more often have faded away with Christmas. It's her turn to taste some reality.
After one hundred days of confinement following a bone marrow transplant, I rejoiced in taking short walks to a nearby park as I was writing 'Girl in Hyacinth Blue.' The uncertainty of my survival made every blade of grass gorgeous in its green intensity, lifting itself up, doing its part to make the world beautiful.
I was depressed after the transplant because it's very tough to understand the trauma you still face. I remember emptying a big bag of medication and just crying and thinking, 'For me to survive another day, this is what I've got to take. For the rest of my life. I'm not sure I can continue.'
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