A Quote by Anne Wojcicki
My sister learned she was a carrier for a recessive disease, Bloom syndrome, late in one of her pregnancies. I remember the panicked call and the weeks of worry as she and her husband awaited his test results; if he was also a carrier, this meant their daughter had a one in four chance of being born with the disorder.
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When my first daughter was born, my husband held her in his hands and said, 'My God, she's so beautiful.' I unwrapped the baby from her blankets. She was average size, with long thin fingers and a random assortment of toes. Her eyes were close set, and she had her father's hooked nose. It looked better on him.
It's remarkable she [Venus Williams] plays at all, given her Sjögren's syndrome [an autoimmune disorder that can cause joint pain]. She's back, winning tournaments. She didn't allow society to tell her, "You have this disease; you can't do that anymore." I look at her, like, "She's not playing at 100 percent. You are. You don't have excuses." Knowing what she went through helped me try to be a more positive person.
She was sound asleep when he came to curl up next to her. She grunted. "Don't worry. I'm too drunk, I won't do anything," he murmered. As she had her back to him, he placed his nose on her neck and slid his arm underneath her to be as close to her as possible. Short strands of her hair tickled his nostrils. "Camille?" Was she asleep? Was she pretending? No answer either way. "I like being with you." A little smile. Was she dreaming? Was she asleep? Who knows.
My mom's younger sister was born with Down syndrome. I was close to my grandmother when I was growing up. I remember talking to my grandmother about politics, and she told me that she regularly voted for the Democrats because she knew that they were going to look out for people like her daughter. That made an impression on me, too.
My mother started out by being a very good girl. She did everything that was expected of her, and it cost her dearly. Late in her life, she was furious that she had not followed her own heart; she thought that it had ruined her life, and I think she was right.
It did no good to cry, she had learned that early on. She had also learned that every time she tried to make someone aware of something in her life, the situation just got worse. Consequently it was up to her to solve her problems by herself, using whatever methods she deemed necessary.
My mother was a union member. She was a mail carrier, a rural mail carrier. She called herself a 'postal packin' grandma' for a good period of time.
At that moment a very good thing was happening to her. Four good things had happened to her, in fact, since she came to Misselthwaite Manor. She had felt as if she had understood a robin and that he had understood her; she had run in the wind until her blood had grown warm; she had been healthily hungry for the first time in her life; and she had found out what it was to be sorry for someone.
Sharp knives seemed to cut her delicate feet, yet she hardly felt them, so deep was the pain in her heart. She could not forget that this was the last night she would ever see the one for whom she had left her home and family, had given up her beautiful voice, and had day by day endured unending torment, of which he knew nothing at all. An eternal night awaited her.
She had, without realizing it at the time, learned to follow Nick's gaze, learned to learn his lust...his desires remained memorized within her. She looked at the attractive women he would look at...She had become him: she longed for these women. But she was also herself, and so she despised them. She lusted after them, but she also wanted to beat them up. A rapist. She had become a rapist, driving to work in a car.
Afterward, I curl around her. We lie in silence until darkness falls, and then, haltingly, she begins to talk...She speaks without need or even room for response, so I simply hold her and stroke her hair. She talks of the pain, grief, and horror of the past four years; of learning to cope with being the wife of a man so violent and unpredictable his touch made her skin crawl and of thinking, until quite recently, that she'd finally managed to do that. And then, finally, of how my appearance had forced her to realize she hadn't learned to cope at all.
My youngest sister, Cindy, has Down syndrome, and I remember my mother spending hours and hours with her, teaching her to tie her shoelaces on her own, drilling multiplication tables with Cindy, practicing piano every day with her. No one expected Cindy to get a Ph.D.! But my mom wanted her to be the best she could be, within her limits.
My sister is my little star, and I'm excited for her and proud of her. With her, I'm protective, but also I don't want to be that sister who's really pushy and thinks they know everything and making her feel like she doesn't know what she's doing. I'm trying to be that cool older sister and not the mom, but it's hard.
Her family had of late been exceedingly fluctuating. For many years of her life she had had two sons; but the crime and annihilation of Edward a few weeks ago, had robbed her of one; the similar annihilation of Robert had left her for a fortnight without any; and now, by the resurrection of Edward, she had one again.
You had every right to be. He raised his eyes to look at her and she was suddenly and strangely reminded of being four years old at the beach, crying when the wind came up and blew away the castle she had made. Her mother had told her she could make another one if she liked, but it hadn't stopped her crying because what she had thought was permanent was not permanent after all, but only made out of sand that vanished at the touch of wind and water.
But on the other hand, I talked to a woman who was a working woman, and it was actually great for her, because she had her husband one week of the month and the other three weeks, while he was with his other wives, she got to pursue what she wanted to do.
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