A Quote by Chloe Benjamin

I work at a non-profit called ALS Worldwide, where we work with ALS (also known as Lou Gehrig's disease) patients and families. It is often heavy work, but I'm grateful to be able to contribute to the ALS community. I'm constantly learning about science and medicine, and I have the honor of corresponding with patients throughout the world.
Probably the toughest time in my life was - was standing there with Ann as we hugged each other and the diagnosis came. And I was afraid it was Lou Gehrig's disease. As we came into the doctor's office, the brochures on his table there were Lou Gehrig's, ALS, and multiple sclerosis.
The ALS ice bucket challenge was really the most brilliant publicity stunt of 2014, and it has brought worldwide awareness for a barely-known disease.
Because ALS is underfunded, patients have had no option but to fade away and die. That is not OK.
ALS does not affect cognitive process. Stephen Hawking, one of smartest people on the planet, has ALS. It rarely affects the eyes. It doesn't affect senses like hearing, taste and touch.
I have been diagnosed with Amyotrophic Lateral Sclerosis (ALS). It's a terminal disease with an average lifespan of two to five years post-diagnosis, and scientists don't know what causes it. ALS prevents your brain from talking to your muscles. As a result, muscles die. As a result, every 90 minutes people die. I am a person.
Many ALS patients end up fading away quietly and dying. For me, this was not OK. I did not want to fade away quietly.
A terminal diagnosis can really mess with your head. Honestly, it makes you want to run away to the moon. Many ALS patients want to fade away quietly. This was not for me.
Life is difficult. Not just for me or other ALS patients. Life is difficult for everyone. Finding ways to make life meaningful and purposeful and rewarding, doing the activities that you love and spending time with the people that you love - I think that's the meaning of this human experience.
Sadly, it runs in my damn family, and that disease is a mystery to just about every scientist! We are definitely interested in finding a cure for ALS! Cure it already!
The 2 million people who work in the NHS and social care are also themselves patients and users. I know they all want to treat patients and users the way they and their families would want to be treated and that is the purpose of our reforms.
Merz art strives for immediate expression by shortening the path from intuition to visual manifestation of the artwork... they will receive my new work als they always have when something new presents itself: with indignation and screams of scorn.
I have survived ALS to continue my work as a musician and composer for 28 years due to the care I receive through insurance and Medicaid. Without these supports, my family can flatout not manage my care, and my life and career will be in serious jeopardy.
Not playing guitar has been the hardest thing about having ALS.
Patients want to be seen as people. For me, the person's life comes first; the disease is simply one aspect of it, which I can guide my patients to use as a redirection in their lives. When doctors look at their patients, however, they are trained to see only the disease.
The doctor who diagnosed me with ALS, or motor neuron disease, told me that it would kill me in two or three years.
In 1978, in the space of 10 months, 28 leukemia patients came to me and they could all work after six days. It is a portal vein circulation disease, not cancer of the blood. So far 150 leukemia patients have come to me and I could help all of them. Do not fear this disease any more.
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