A Quote by Darold Treffert
I think one of the problems with the definition of autism is we keep expanding it. It started as "early infantile autism", and then it became "autism", and now it's "autism spectrum disorder". I'm not opposed to that from the standpoint of trying to broaden our vistas, and so forth. But from a research point of view, the term autism is lost in specificity.
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I think that if I could do any sort of research of autism that I wanted to do, at this point I would take a sample of classic, early infantile autism persons and compare them with what I call "classic late onset autism", individuals. I think we will find that the cause of those youngsters with autism who have autism from birth is probably different than those who have late onset autism.
From a scientific standpoint, Aspergers and autism are one syndrome. Aspergers is part of the autism spectrum, not a separate disorder.
As a scientist leading a funding agency for autism research, I think of autism as a neurodevelopmental disorder.
I have a fairly strict definition of early infantile autism. That is not to say that people who don't meet that classic description don't have autism, but we might do well to narrow our definitions, and our samples, down to groups that are very similar, because I think you're more likely to find the cause.
Mild autism can give you a genius like Einstein. If you have severe autism, you could remain nonverbal. You don't want people to be on the severe end of the spectrum. But if you got rid of all the autism genetics, you wouldn't have science or art. All you would have is a bunch of social 'yak yaks.'
What do we know about autism in 2013? Autism symptoms generally emerge before age three and usually much earlier, often as language delays or lack of social engagement. Recent research suggests that autism can be detected during the first year of life, even before classic symptoms emerge. Indeed, the symptoms may be a late stage of autism.
The idea of a cure for autism is itself controversial. Some people with autism say they don't want to be cured, because autism gives them a different way of looking at the world.
With the incredible rate of growth of autism diagnoses in New Jersey, it is critical that we support the research, education, and access to services that individuals on the autism spectrum and their families need.
What is missing from today's dialogue is the effect autism is having on families, our society and what the unknown factors are. The 300lb. gorilla in the room is that our children with autism today will soon become adults with autism.
Autism isn't something a person has, or a shell that a person is trapped inside. There's no normal child hidden behind the autism. Autism is a way of being. It is pervasive; it colors every experience, every sensation, perception, thought, emotion and encounter - every aspect of existence. It is not possible to separate the autism from the person – and if it were possible, the person you'd have left would not be the same person you started with.
I think that the definition of autism is too broad. You got to remember, autism definition is a behavioral profiling.
When I was diagnosed, mothers were blamed for causing autism. There was no autism support. They'd put autistic kids in institutions. I had severe autism. But my mom wouldn't accept that. I was put in speech therapy. My mother was always pushing me to do stuff.
It is not all that common, but there is a phenomenon where autism could get worse at about age two. There are some controversies whether regression is a prominent part of autism, but many people feel that it's very hard to diagnose autism before you can begin really talking in detail with a child.
My brother was diagnosed with autism, so it's something that hits close to home. And as I got older - especially when I started modeling and being in the city - I wanted to do help. I became involved with Autism Speaks.
My life - autism's an important part of it, but it bothers me when I see kids where autism and their autism is the only thing they think about. I'd rather have them think about, you know, some art work they were gonna do or some science they wanted to do.
I'm hoping that autism is going to get to that same point, where it becomes quite ordinary to say, 'I have autism,' or 'I have Asperger's syndrome,' and that there will be many more resources available to make life easier for people on the autistic spectrum.
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