A Quote by Elise Stefanik
The more we know about Lyme, the more we can do to treat patients and educate families to stop the spread of this debilitating disease.
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Lyme disease is very debilitating. Being from the East Coast I know Lyme disease is quite common and may lay dormant and may produce flu-like symptoms, as well as neurological issues.
Once an effective drug is approved to treat a deadly condition, introducing a second drug to treat the same disease can be hard. It's tough to recruit patients with a debilitating disease for a clinical trial when a proven medicine is already available.
Lyme disease has become a fast epidemic worldwide. I am determined to help find a cure and figure out a way to share knowledge with the millions of people struggling with this debilitating disease.
Value in medicine depends on information - as I said in 'Let Patients Help,' 'People perform better when they're informed better.' It follows that to make patients and families more effective in care, they need to know more.
The Centers for Disease Control and Prevention has established highly specific criteria for the diagnosis of Lyme disease: an acknowledged tick bite, the appearance of a bull's-eye rash, and, for those who don't live in a region where Lyme is common, laboratory evidence of infection.
The 2 million people who work in the NHS and social care are also themselves patients and users. I know they all want to treat patients and users the way they and their families would want to be treated and that is the purpose of our reforms.
I saw a video on YouTube of a girl who had very similar reactions to late-stage Lyme disease as I did. And I thought it was crazy. And when I saw her basically have a seizure on camera that looked very much like my seizure I felt, "Oh my god. That's me." And so it was really important to me, and I said to Sini, 'We have to find some way to not just talk about Lyme disease, but to show it.
Patients want to be seen as people. For me, the person's life comes first; the disease is simply one aspect of it, which I can guide my patients to use as a redirection in their lives. When doctors look at their patients, however, they are trained to see only the disease.
A study of over 10,000 patients shows clearly that chemo's supposedly strong track record with Hodgkin's disease (lymphoma) is actually a lie. Patients who underwent chemo were 14 times more likely to develop leukemia and 6 times more likely to develop cancers of the bones, joints, and soft tissues than those patients who did not undergo chemotherapy .
Laws that treat people living with HIV or those at greatest risk with respect start with the way that we treat them ourselves: as equals. If we are going to stop the spread of HIV in our lifetime, then that is the change we need to spread.
In 1978, in the space of 10 months, 28 leukemia patients came to me and they could all work after six days. It is a portal vein circulation disease, not cancer of the blood. So far 150 leukemia patients have come to me and I could help all of them. Do not fear this disease any more.
Public attitudes follow real life experience, and as marriage equality has spread to more communities, Americans have seen more freedom, stronger families, more protection for children and more fairness.
I work at a non-profit called ALS Worldwide, where we work with ALS (also known as Lou Gehrig's disease) patients and families. It is often heavy work, but I'm grateful to be able to contribute to the ALS community. I'm constantly learning about science and medicine, and I have the honor of corresponding with patients throughout the world.
I believe evidence is overwhelming that chronic Lyme is a terrible, overwhelming disease, and we need to find ways to treat this. To say otherwise is an inaccurate and unscientific opinion.
In 2013, after a challenging two years of long-term IV antibiotics and six weeks at a clinic in florida, I received the 'Star Light' award from the Lyme Research Alliance for my advocacy and strength to light the way of Lyme disease awareness.
Black patients were treated much later in their disease process. They were often not given the same kind of pain management that white patients would have gotten and they died more often of diseases.
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