A Quote by Elizabeth Emken
The position of Autism Speaks has been for quite awhile that we need to find out what's happening. We know there's a genetic component, and there's an environmental trigger, and until we get to the bottom of what's happening, no one knows what causes autism.
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Everyone recognises that genes are part of the story but autism isn't 100% genetic. Even if you have identical twins who share all their genes, you can find that one has autism and one doesn't. That means that there must be some non-genetic factors.
I think that if I could do any sort of research of autism that I wanted to do, at this point I would take a sample of classic, early infantile autism persons and compare them with what I call "classic late onset autism", individuals. I think we will find that the cause of those youngsters with autism who have autism from birth is probably different than those who have late onset autism.
Genes are thought to contribute a certain amount to the cause of autism but it's not 100 per cent. It might be about 60 per cent genetic. So there are going to be environmental factors that mediate the impact of autism.
I think one of the problems with the definition of autism is we keep expanding it. It started as "early infantile autism", and then it became "autism", and now it's "autism spectrum disorder". I'm not opposed to that from the standpoint of trying to broaden our vistas, and so forth. But from a research point of view, the term autism is lost in specificity.
My son has autism, and I founded the government relations department at Autism Speaks.
The thing is, autism is all different, you know, variables. And you start out with a certain amount of, you know, the point where the differences in the brain are going to just be a personality variant and, like, for very mild Asperger's. But you get into more severe kinds of autism where there's obvious speech delay, obvious abnormal behavior in a two and three-year-old child, you know, the initial neurology is different from case to case. But all children with autism are going to do better if they get really good educational intervention.
What do we know about autism in 2013? Autism symptoms generally emerge before age three and usually much earlier, often as language delays or lack of social engagement. Recent research suggests that autism can be detected during the first year of life, even before classic symptoms emerge. Indeed, the symptoms may be a late stage of autism.
My brother was diagnosed with autism, so it's something that hits close to home. And as I got older - especially when I started modeling and being in the city - I wanted to do help. I became involved with Autism Speaks.
It is not all that common, but there is a phenomenon where autism could get worse at about age two. There are some controversies whether regression is a prominent part of autism, but many people feel that it's very hard to diagnose autism before you can begin really talking in detail with a child.
The idea of a cure for autism is itself controversial. Some people with autism say they don't want to be cured, because autism gives them a different way of looking at the world.
I'm hoping that autism is going to get to that same point, where it becomes quite ordinary to say, 'I have autism,' or 'I have Asperger's syndrome,' and that there will be many more resources available to make life easier for people on the autistic spectrum.
Autism currently affects one in 88 children in the U.S., and its prevalence continues to rise. That's why it's important to help organizations like Autism Speaks raise awareness and funds to support families and individuals impacted by it.
We have learned that a majority of parents whose children have late-onset or acquired autism believe it is vaccine-related. They deserve answers. We have also learned that the parents have been our best investigators in looking for both causes of autism and for treatments.
The main problem, certainly, for the people who will not get vaccinated with Thimerosal, which was put into polio vaccine. And the belief was that it may cause autism. And there's been an awful lot done in terms of studies in Western Europe, Canada, the United States, and no correlation was found between Thimerosal and autism from those children who took vaccines. Indeed, when Thimerosal was taken out of many of these vaccines, the autism rate in the United States still rose.
What causes autism? As far as we know in 2013, there is no single gene or single environmental factor that accounts for the more than 1 million Americans with ASDs.
My life - autism's an important part of it, but it bothers me when I see kids where autism and their autism is the only thing they think about. I'd rather have them think about, you know, some art work they were gonna do or some science they wanted to do.
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