A Quote by Gabriel Byrne
I still cannot fathom how difficult it was for the women I met to find out that they were HIV-positive. It is such a courageous undertaking in countries where there is still considerable stigma about the disease. They got tested to ensure that their unborn babies would have a chance of life by being born free of the virus.
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It's really important for people who are HIV positive to reach out to let other people know that they can be tested, they can find out they can still live a life -- a positive life, a happy life.
There's so much stigma around HIV/AIDS. It's a challenging issue, and the people that already have been tested and know their status find it very, very hard to disclose their status, to live with that virus, and to even seek out the kind of information they need. This experience of going to South Africa a decade ago really woke me up to the scale of the HIV/AIDS pandemic in sub-Saharan Africa, how it was affecting women and their children. I haven't been able to walk away from it.
We think that if we get tested, that means you have to have HIV. Or we think that just by knowing someone with HIV, we're going to get HIV or because he's gay or she's a lesbian or whatever. This false information has been put out there and it's created this stigma that stops us from going to find out if we're infected. The truth is it doesn't matter who you are, if you're having sex, you need to be getting tested, plain and simple.
The nature of a protective immune response to HIV is still unclear. Because in a very, very unique manner, unlike virtually any other microbe with which we're familiar, the HIV virus has evolved in a way that the immune system finds it very difficult, if not impossible, to deal with the virus.
HIV AIDS is a disease with stigma. And we have learned with experience, not just with HIV AIDS but with other diseases, countries for many reasons are sometimes hesitant to admit they have a problem.
And the stigma hasn't really changed that much in 31 years. You are still getting people - it's a shame-based disease. It's based on sexual transmission. And it's still shame-based. And until people feel strong enough and feel loved enough to actually open up and say, listen, I'm HIV-positive, then we are facing an uphill battle.
When a person tests positive for HIV, it is not a test for the virus itself but for antibodies to the virus, and the test is not able to distinguish between HIV antibodies and a multitude of other antibodies. Many conditions can lead to a false positive result, including flu shots, hepatitis, and pregnancy.
I've met many young women who are HIV positive and courageously fighting the disease. Their determination to live a full life and see their children live in a better world is deeply inspiring to me.
I knew the HIV virus was something anyone could get but also believed the chances were very slim... I honestly believed I had a better chance of winning the lottery than contracting this disease. I have never been so wrong in my life.
HIV/AIDS from converted from a lethal disease into a chronic disease because basic scientists' fundamental research was done that illuminated aspects of that virus and allowed the generation of therapies like antiretroviral therapies. And so now HIV/AIDS is not a lethal disease, it is a chronic disease.
When the Berlin Wall fell and suddenly all those countries had burgeoning democracies, women were still being left out. The big turning point, about ten years ago, was moving from a notion of empowering women to actually looking at where you can make the most difference, and it's in a girl's life.
I don't particularly like babies. They are loud and smelly and, above all other things, demanding. No matter how much free day care you throw at women, babies are still time-sucking monsters with their constant neediness.
I don't think I have HIV. I don't think that I ever had HIV. I think I had hepatitis. I got rid of the hepatitis, and since then, every single time I have tested for HIV, it has been negative. The original test was a false positive.
For women raised in the '70s, high heels can still carry a stigma; they're associated with being stupid, with just wanting to please a man. Other women find them empowering.
It can be difficult for people to talk about it, because there still is that stigma around mental illness. But I would encourage people to do that, because they'll be surprised once they do 'come out' how many other people have had similar experiences.
The AIDS disease is caused by a virus, but the AIDS epidemic is not. The AIDS epidemic is fueled by stigma, by hate, by misinformation, by ignorance, by indifference. Science has accomplished miracles over the past 20 years, and science can now end this disease - but it cannot end the epidemic. We need more than medicine. We can do something about these things. We need to speak out about the changes we need to make in our society.
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