Black patients were treated much later in their disease process. They were often not given the same kind of pain management that white patients would have gotten and they died more often of diseases.
Because of the war on drugs, pain patients are treated with skepticism and pain doctors live in fear of being prosecuted for overprescribing. The end result is that addicts still get their opioids without much trouble, while genuine patients often can't find treatment. Those who do must typically be tracked in a database and must schedule frequent, expensive doctor visits for surveillance like urine testing.
There are several patients - there are thousands of patients, tens of thousands of patients, that carry either a stimulator in the brain or in the periphery, in the inner ear, to restore neurological functions or to control diseases like Parkinson's disease.
The patients often try to starve themselves, to hang themselves, to cut their arteries; they beg that they may be burned, buried alive, driven out into the woods and there allowed to die. One of my patients struck his neck so often on the edge of a chisel fixed on the ground that all the soft parts were cut through to the vertebrae.
Patients want to be seen as people. For me, the person's life comes first; the disease is simply one aspect of it, which I can guide my patients to use as a redirection in their lives. When doctors look at their patients, however, they are trained to see only the disease.
A study of over 10,000 patients shows clearly that chemo's supposedly strong track record with Hodgkin's disease (lymphoma) is actually a lie. Patients who underwent chemo were 14 times more likely to develop leukemia and 6 times more likely to develop cancers of the bones, joints, and soft tissues than those patients who did not undergo chemotherapy .
We went through the records and we found over five hundred of his patients who were alive and well five years after their treatment, with no cancer. And Dr. Burton didn't selectively give us these. These were "take what you want. Here are the patients I treated." So there was statistical improvement - more so than any cancer institution in the United States could show.
A central notion in the Affordable Care Act was we had an inefficient system with a lot of waste that didn't also deliver the kind of quality that was needed that often put health care providers in a box where they wanted to do better for their patients, but financial incentives were skewed the other way... We don't need to reinvent the wheel; you're already figuring out what works to reduce infections in hospitals or help patients with complicated needs.
If intelligence were a television set, it would be an early black-and-white model with poor reception, so that much of the picture was gray and the figures on the screen were snowy and indistinct. You could fiddle with the knobs all you wanted, but unless you were careful, what you would see often depended more on what you expected or hoped to see than on what was really there.
If there is one lesson that I have learned during my life as an analyst, it is the lesson that what my patients tell me is likely to be true - that many times when I believed that I was right and my patients were wrong, it turned out, though often only after a prolonged search, that my rightness was superficial whereas their rightness was profound.
I work at a non-profit called ALS Worldwide, where we work with ALS (also known as Lou Gehrig's disease) patients and families. It is often heavy work, but I'm grateful to be able to contribute to the ALS community. I'm constantly learning about science and medicine, and I have the honor of corresponding with patients throughout the world.
My mother was a dramatic and egocentric person, and she died before my father, who died of Alzheimer's disease. But I'd often thought, God, we were so lucky that was the order in which they died because she would have felt put upon.
There is an enormous amount of options that a physician can provide today, right down from curing patients, treating patients, or providing patients with psychic solace or pain relief. So, in fact, the gamut of medical intervention is enormous.
Patients are patients because they are out of rapport with their own unconscious... Patients are people who have had too much programming - so much outside programming that they have lost touch with their inner selves.
Lets take away the incentives to do 'to' patients and instead create incentives to do 'for' patients, to be 'with' patients. We don't need to do comparative effectiveness trials to see if that works; we can just ask patients.
Part of what motivated my writing was anger. I was angry that the daily misery of doctors, nurses, and patients was being trivialised into soap opera. We were made to feel bad because we were not perfect like our television counterparts. We were resentful that our patients did not get better as quickly as they did on telly - or at all.
Patients can often be discharged from hospital, then re-admitted a few days later with complications.