The Centers for Disease Control and Prevention has established highly specific criteria for the diagnosis of Lyme disease: an acknowledged tick bite, the appearance of a bull's-eye rash, and, for those who don't live in a region where Lyme is common, laboratory evidence of infection.
Lyme disease is very debilitating. Being from the East Coast I know Lyme disease is quite common and may lay dormant and may produce flu-like symptoms, as well as neurological issues.
I saw a video on YouTube of a girl who had very similar reactions to late-stage Lyme disease as I did. And I thought it was crazy. And when I saw her basically have a seizure on camera that looked very much like my seizure I felt, "Oh my god. That's me." And so it was really important to me, and I said to Sini, 'We have to find some way to not just talk about Lyme disease, but to show it.
Getting chronic Lyme disease is probably the fastest way to figure out what and who is real in your life.
My life is raw, authentic, and focused on giving back to the journey God has given me; I want to leave this earth a better place with answers and education on Lyme and invisible chronic disease.
Life is. I am. Anything might happen. And I believe I may invest my life with meaning. The uncertainty is a blessing in disguise. If I were absolutely certain about all things, I would spend my life in anxious misery, fearful of losing my way. But since everything and anything are always possible, the miraculous is always nearby and wonders shall never, ever cease.
I think that there's a clinical mental illness called depression, but I believe that post-industrial America has been narcotized by progress. There's a cultural malaise - mental illness or no - that everybody suffers from at some point in their life.
For me... I feel like gratitude has really helped me to keep perspective on everything. The gratitude of doing what I get to do. The gratitude for my everyday life. The gratitude for simple things.
I believe I got Lyme disease for a reason and if that is to help bring awareness, that is my mission and I will do the best that I can to do that.
If left untreated, Lyme disease can be crippling, yet it is a difficult illness to contract: a tick needs to attach itself to your body for at least twenty-four hours. Even then, two weeks worth of commonly prescribed antibiotics will kill the bacterium.
From childhood I was compelled to concentrate attention upon myself. This caused me much suffering, but to my present view, it was a blessing in disguise for it has taught me to appreciate the inestimable value of introspection in the preservation of life, as well as a means of achievement.
My own life has had so many twists that I keep thinking I'll have one blessing that is not in disguise.
In 2013, after a challenging two years of long-term IV antibiotics and six weeks at a clinic in florida, I received the 'Star Light' award from the Lyme Research Alliance for my advocacy and strength to light the way of Lyme disease awareness.
At the last, this is what will determine a fulfilling, meaningful life, a life that, behind all the facades, every one of us longs to live: gratitude for the blessings that expresses itself by becoming the blessing.
Gratitude BRINGS MORE to be grateful about, so today I make the point of expressing gratitude for everything in my LIFE!
Lyme has brought me to my knees; this disease is a silent killer and does not have a face.