A Quote by Stuart Duncan
If you can't see the gift in having a child with autism, you're focusing too much on the autism and not enough on the child.
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As a parent with a child with autism, its been really tough to experience your child having autism.
It is not all that common, but there is a phenomenon where autism could get worse at about age two. There are some controversies whether regression is a prominent part of autism, but many people feel that it's very hard to diagnose autism before you can begin really talking in detail with a child.
It's not just the child that has autism. It's the whole family that has autism. It's not a one person thing.
Autism isn't something a person has, or a shell that a person is trapped inside. There's no normal child hidden behind the autism. Autism is a way of being. It is pervasive; it colors every experience, every sensation, perception, thought, emotion and encounter - every aspect of existence. It is not possible to separate the autism from the person – and if it were possible, the person you'd have left would not be the same person you started with.
I think one of the problems with the definition of autism is we keep expanding it. It started as "early infantile autism", and then it became "autism", and now it's "autism spectrum disorder". I'm not opposed to that from the standpoint of trying to broaden our vistas, and so forth. But from a research point of view, the term autism is lost in specificity.
If you have a child with autism, and he or she has good intelligence, with no delay in language learning maybe there is an advantage to autism as well? Maybe it gives them a better understanding of mathematics, or science? After all, the essence of science and the essence of autism is to notice patterns that others have not noticed.
We can either continue to collectively stand on the sidelines and debate what is causing autism and if it is an epidemic or we can get on the field and start addressing the real problem - a generation of children with autism. We are not focusing enough on prevention, treatments and support services.
I think that if I could do any sort of research of autism that I wanted to do, at this point I would take a sample of classic, early infantile autism persons and compare them with what I call "classic late onset autism", individuals. I think we will find that the cause of those youngsters with autism who have autism from birth is probably different than those who have late onset autism.
What is missing from today's dialogue is the effect autism is having on families, our society and what the unknown factors are. The 300lb. gorilla in the room is that our children with autism today will soon become adults with autism.
What do we know about autism in 2013? Autism symptoms generally emerge before age three and usually much earlier, often as language delays or lack of social engagement. Recent research suggests that autism can be detected during the first year of life, even before classic symptoms emerge. Indeed, the symptoms may be a late stage of autism.
Don't think that there's a different, better child 'hiding' behind the autism. This is your child. Love the child in front of you. Encourage his strengths, celebrate his quirks, and improve his weaknesses, the way you would with any child.
The idea of a cure for autism is itself controversial. Some people with autism say they don't want to be cured, because autism gives them a different way of looking at the world.
Don't think that there's a different, better child 'hiding' behind the autism. This is your child. Love the child in front of you. Encourage his strengths, celebrate his quirks, and improve his weaknesses, the way you would with any child. You may have to work harder on some of this, but that's the goal.
My life - autism's an important part of it, but it bothers me when I see kids where autism and their autism is the only thing they think about. I'd rather have them think about, you know, some art work they were gonna do or some science they wanted to do.
The thing is, autism is all different, you know, variables. And you start out with a certain amount of, you know, the point where the differences in the brain are going to just be a personality variant and, like, for very mild Asperger's. But you get into more severe kinds of autism where there's obvious speech delay, obvious abnormal behavior in a two and three-year-old child, you know, the initial neurology is different from case to case. But all children with autism are going to do better if they get really good educational intervention.
Having a child with Autism can mess with your head: You feel like you can move mountains for them yet you're powerless at the same time.
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