A Quote by Suleika Jaouad
Even the word 'cancer' is ugly, scary, burdensome - a roadblock for a conversation before it even starts. Who wants to go there? Much of the time, I'd rather not bring it up if I don't have to - and I'm the one with the disease!
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Sometimes I go to a test screening and look at the audience in line, and I start to go, "Okay, I bet this is going to work, and this isn't going to work." It's weird, but just going and facing the music and putting it out before a crowd, even before it starts playing, that exercise of putting it up on a screen for people makes you realize things even before it starts rolling. It's really weird. I've heard other people say that, too.
When they told me I had cancer - a very rare form called appendiceal cancer - I was shocked. But I went straight into battle mode. Every morning, I'd wake up and have an internal conversation with cancer. 'All right, dude,' I'd tell it, 'go ahead and hit me. But I'm going to hit you back even harder.'
There is nothing ugly about death; but man, out of his fear, has made even the word, death ugly and unutterable. People don't like to talk about it. They won't even listen to the word death.
The man in the street has unfortunately been sold the idea that the breakthrough cure for cancer is just around the corner... The very prospect of effective treatment seems so remote that it doesn't even enter into the speculative day-to-day conversation of people engaged in cancer research... New treatments have not produced any detectable decline in the total annual cancer mortality, even for children.
When I was 19 years old, both of my parents died in the same year; my mom of cancer and my dad in a car accident. Through the next two or three years and a series of bad decisions - all my own, I might add - I ended up literally homeless, before that was even a word. I even slept occasionally under a pier on the Gulf Coast.
I would love to bring to light, besides just educating about Lyme in general, that it's a very complicated disease and it's very, very scary for the people who are dealing with it because your insides don't match your outsides. That can be very infuriating because people would say, "You look great." And you're like, I can't even carry on a conversation with you right now.
I remember growing up and hearing the word "ugly" a lot. "I'm ugly." "She ugly." "He ugly." I hated it then, and I hate it now. I go past physical beauty; I tell people they have a beautiful spirit and that is something different.
Let the word and the legend go before you. Let the world go before you. Let your shadow grow. Let it grow hair on its face. Let it become dark. Given time, words may even enchant an enchanter.
I guess most of us would rather not discuss cancer because we are all afraid we might be told we have it. It's hard for people to even say the word, and that's the first obstacle you have to overcome when you are diagnosed with the disease. I think once you understand a little more about it ... I don't mean it gets any easier ... but I think you give it more in-depth thought about how you're going to deal with it.
I'm someone who has a hard time turning down a conversation. And an even harder time starting a conversation and ending it abruptly - ending it before it's over.
Even now, it's still hard for him to say it. I don't blame him. It's an icky word. Why couldn't whoever was in charge of naming things call cancer 'sugar' and sugar, 'cancer'? People might not eat so much of the stuff then. And it's so much more pleasant to die of sugar.
Even though I support the blue side of Manchester's football heritage, I don't really mind that wherever I go in the world it's not Manchester City that starts the conversation. 'Ah, yes, Manchester United,' is the response when I say where I come from. It's commonplace everywhere - in Europe, Africa, Asia and even the U.S.
I guess that one of the most important things I've learned is that nothing is ever completely bad. Even cancer. It has made me a better person. It has given me courage and a sense of purpose I never had before. But you don't have to do like I did...wait until you lose a leg or get some awful disease, before you take the time to find out what kind of stuff you're really made of. You can start now. Anybody can.
Dementia is quite unlike cancer or heart disease or any of those other conditions where you bargain with God for a cure or even just a bit more time.
I like to think of making cancer a chronic disease rather than focus just on curing cancer.
Even for the diseases we don't focus on, cancer, heart disease, you're going to be way better off being sick 10 years from now than any time in the past.
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