A Quote by Tamlyn Tomita
In fact, when we as neuro-typical people encounter a person with autism spectrum syndrome who's always been that way it is that we have to adjust. Just because we can read people with autism correctly, whatever that word is why do we always default to saying, 'Well, that kid is not normal?' What is normal?
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Autism isn't something a person has, or a shell that a person is trapped inside. There's no normal child hidden behind the autism. Autism is a way of being. It is pervasive; it colors every experience, every sensation, perception, thought, emotion and encounter - every aspect of existence. It is not possible to separate the autism from the person – and if it were possible, the person you'd have left would not be the same person you started with.
I'm hoping that autism is going to get to that same point, where it becomes quite ordinary to say, 'I have autism,' or 'I have Asperger's syndrome,' and that there will be many more resources available to make life easier for people on the autistic spectrum.
I think one of the problems with the definition of autism is we keep expanding it. It started as "early infantile autism", and then it became "autism", and now it's "autism spectrum disorder". I'm not opposed to that from the standpoint of trying to broaden our vistas, and so forth. But from a research point of view, the term autism is lost in specificity.
The idea of a cure for autism is itself controversial. Some people with autism say they don't want to be cured, because autism gives them a different way of looking at the world.
From a scientific standpoint, Aspergers and autism are one syndrome. Aspergers is part of the autism spectrum, not a separate disorder.
Mild autism can give you a genius like Einstein. If you have severe autism, you could remain nonverbal. You don't want people to be on the severe end of the spectrum. But if you got rid of all the autism genetics, you wouldn't have science or art. All you would have is a bunch of social 'yak yaks.'
My autism is a very mild form. It was diagnosed at the age of 25, partly because it wasn't diagnosable as a teenager (this is Asperger's syndrome, specifically). But there were certainly traits within that condition, within the autism spectrum in general, especially at the high functioning end, that I think are best looked at as pluses.
Steve Jobs was probably mildly on the autistic spectrum. Basically, you've probably known people who were geeky and socially awkward but very smart. When does geeks and nerds become autism? That's a gray area. Half the people in Silicon Valley probably have autism.
As the diagnosis of autism is increasing the diagnosis of mental retardation is decreasing. And more and more on the other end, the high end, more children who are just a little bit off, who ordinarily you would not single out now are being described as perhaps Asperger’s syndrome or on the high end of the autism spectrum, so I don’t believe there is an epidemic.
When I was diagnosed, mothers were blamed for causing autism. There was no autism support. They'd put autistic kids in institutions. I had severe autism. But my mom wouldn't accept that. I was put in speech therapy. My mother was always pushing me to do stuff.
I think that if I could do any sort of research of autism that I wanted to do, at this point I would take a sample of classic, early infantile autism persons and compare them with what I call "classic late onset autism", individuals. I think we will find that the cause of those youngsters with autism who have autism from birth is probably different than those who have late onset autism.
It's not just the child that has autism. It's the whole family that has autism. It's not a one person thing.
With the incredible rate of growth of autism diagnoses in New Jersey, it is critical that we support the research, education, and access to services that individuals on the autism spectrum and their families need.
It is not all that common, but there is a phenomenon where autism could get worse at about age two. There are some controversies whether regression is a prominent part of autism, but many people feel that it's very hard to diagnose autism before you can begin really talking in detail with a child.
Since I can remember, being different was always hard around normal people. That's just how it is, whether you have vitiligo, a deformity, or a different way of thinking or dressing. It's going to always be weird for normal people.
There are disagreements over whether autism is something that should be always and all the time embraced and celebrated as just a different way to be human, or whether autism sometimes can be really so debilitating to individuals that you want to do something to change those disabilities in them.
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