A Quote by Tony Robinson
Both my parents developed dementia in their old age. Everyone I know whose parents had dementia feel that they didn't deal with it very well.
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I had the experience of having my grandmother in a nursing home at the end of her life, and had dementia set in with my father. He was in a nursing home with dementia at the end of his life, but it happened for me personally 10 years ago. My father was much older than my mother, so I experienced it as a pretty young person. People's parents die at various ages, but my father died of mortality. He died of being an old person. Illness and stuff happened, but essentially, he was old and he was going to die.
What I did when I identified Mike Webster's thing, I showed it to other doctors. We all agreed that this was something new, but we had to give it a name. This was not dementia pugilistica. Maybe we could have called it dementia footballitica!
I was the oldest child, and both my parents worked, so I had a great deal of responsibility from a very young age.
That's the thing with dementia. If you're with somebody who has a serious illness, you can usually talk to them, have a laugh every now and then - the person is still with you. With dementia, there's no conversation; there's no togetherness, no sharing.
I've had five grandparents who have had Alzheimer's. I've been involved in raising money for two decades, so I thought, how could I combine my work with this commitment to helping dementia? One of the myths is that it's an older person's disease. We're seeing early onset dementia among people at 45. It's the disease of everybody.
We have to get behind the scientists and push for a dementia breakthrough. It could be that we fear dementia out of a sense of hopelessness, but there is hope, and it rests in the hands of our scientists.
I spent a lot of time researching dementia, read papers on the subject, and also found a lot of dementia diaries on the Internet which were a great help in getting an insight into the disease.
When you have three teenage girls, and you're married 21 years, and have a mother who's blind in one eye and has dementia who lives with you, and your dad has worse dementia, and you're into metal, and your wife is born again, you're never running out of material.
Dementia is not exclusively a problem of the developed world.
I remember breaking the news to both my parents that I wanted to be a director, and they both looked very doubtful. They didn't know what a closet Hindi film buff I was. I used to dance to old Hindi films songs on the sly, so my decision to be a part of Hindi cinema was shocking even for my parents.
I had parents who believed I could do anything - and I know how that made me feel. I think both my parents, having careers in the medical profession, feel they are helping people on a daily basis, and that was inculcated in me as a value. I had to struggle with giving up the idea of becoming a doctor myself.
In my opinion, everybody is getting older and older. We have a great deal of dementia because nobody grew old enough to get it.
I've tried really hard to care about things that were very different from my parents. I was curious if I could care about [money] on some fundamental level, and I couldn't. That wasn't the metric of success I wanted in my life. I've talked about this to my friends who are doctors and whose parents are doctors, or who are lawyers and their parents are lawyers. It's a funny thing to realize I feel called to this work both as a daughter and also as someone who believes I have contributions to make.
I have very smart parents. I feel I learned a lot from both of my parents and life experience.
My parents were concerned that I would not get good schooling, so they put me up in my uncle's house in Dharwad, and I spent about six years there. So at a very young age, I was away from my parents. I developed an amount of independence and learned to stand on my own feet.
My mother was wonderfully out about her dementia. She would sort of - she would say to me, I came out to the window cleaner about having dementia. You know, I love the way that verb for coming out of the closet has now become so socially useful for all sorts of situations, like when you need to explain to the window cleaner that you don't know if you paid him or not.
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